Take Howie Mandel's Fibs or Facts Quiz #stroke

     Howie Mandel is the National Stroke Association's spokesperson.  He's campaigning to educate people with a Fibs or Facts Quiz and help raise $25,000. (Don't worry it won't cost you a penny)

Many Faces of Stroke

When you hear about someone having a stroke a certain image comes to mind.  That of an older person. For many Americans for the past few years on December 31 counting down to midnight we saw stroke survivor Dick Clark.  His slurred speech and drooped mouth were consistent with what we tend to think a massive stroke survivor looks like.  His battle back from a massive stroke in 2004 was a source of Hope to many who battle the same struggles of speech and mobility.

Meet Isiah, born last September he seemed to be a perfectly healthy baby.  Within 24 hours that all changed.  Less than one day old Isaiah had a stroke.   

This cutie is Brody, he had a stroke before he was even born.  He is the survivor of an in-utero stroke.  His twin sister was born healthy. While his family celebrated his sister's reaching milestones they  watched as Brody struggled due to his lack of muscle tone, balance and coordination.  

Meet Evie.  At six months she was diagnosed with right-side hemiplegia due to in-utero stroke.  She doesn't like to be told she can't do something, according to her mom she might do it differently than others but she always gets it done.

Did you know children could have strokes?  How about developing babies having stroke in-uetro did you know that?  Stroke occurs in 1 out of every 2,800 births.  To put that in perspective that would mean that here in Clay County we are graduating 2,537 Seniors from High School in 2 weeks. Assuming they will follow the current county statistics of having three children The reality is that three children born to these seniors will suffer a stroke either in-utero or at birth.  You can read more about Isaiah, Brody, Evie and other pediatric stroke survivors on CHASA  

CHASA stands for Children's Hemiplegic and Stroke Association.  This organization helps children who have suffered an early brain injury as well as their families.  Founded in 1996 by parents of children effected with brain injury the organization has grown to become an international authority on the needs and care of children living with hemiplegic(paralysis effecting one side of the body) cerebral palsy.  Not only a support group they have sponsored international symposiums to bring together distinguished pediatric stroke researchers and neurologists to share findings and developments occurring in the field.  CHASA has three different websites where families can find support and information.  They also sponsor an annual retreat for families.  They hold various fund-raising events as well like this one:

You have gotta love the name of this one :) Very simply it is people like me raising awareness of Pediatric Stroke by blogging and having a direct donation box on their page. So if you are able please click on the donate button located at the top left of this page.

Stroke Awareness 5 Faces Pledge

Help Save Lives

Today's post is short and sweet:
Take the Five Faces Pledge today and join National Stroke Association's Faces of Stroke campaign in giving lifesaving information about stroke to five people you care about.

What's your Stroke Score?

Before I go any further take a moment and fill out this scorecard:

     Done? Good, we'll get to what your results mean in a bit.  

Too often we are quick to dismiss the possibility of a medical event affecting us because we “scored" really well on a test like this.  No one absolutely NO ONE can be guaranteed that they are not going to have a stroke.  Anyone no matter your age, race or sex can have a stroke.  There are risk factors, some are listed above, that you can control and reduce your chances of suffering a stroke.  The reality is that  80% of strokes are preventable.  You can make lifestyle changes or many and others can be treated medically.   

     There are uncontrollable factors that you need to be aware of.  These include being over the age of 55, being male, being African American, Hispanic or Asian/Pacific Islander, or having a family history of stroke or TIA (transient ischemic attack) just to name a few. The National Stroke Association has an Interactive Risk Factor Tool that explains 26 of the more common risk factors.  Please go through all the slides as I guarantee you'll find something you didn't know as I did. 

 OK back to your score.  

You should have 3 numbers, one for the red column, one for the yellow column and one for the green column.  Compare those numbers to the Risk Scorecard Results:

Had I taken this test pre-stroke my numbers would have been:  2   0   6     So what do my scores mean?  According to the chart I was at a low risk for having a stroke.  It simply proves that anyone anywhere at any time can suffer a stroke.  

BUT you CAN control the odds of it happening.    

So please the next time you visit your doctor have a Stroke Conversation.  Take with you not only the score from this Risk Assessment but also anything that caught your attention from the Risk Factor Tool.  

  

Grace Kelly, Cary Grant and Lady Bren!

     I have to admit I like seeing my name next to the likes of Hollywood Royalty.  However the reasoning isn't glorious.  Grace Kelly, Cary Grant and I have all suffered Strokes. 
     Like so many things it seems when a celebrities name is attached to anything the public seems to stand up and take notice.  In 2011, three weeks before the Oscars, the International Stroke Conference was held in Hollywood.  Using the location as inspiration the organizers of the conference, American Heart Association/American Stroke Association decided to research the frequency of stroke among a very elite group of people, Oscar nominees. 
    They discovered of the 409 men and women nominated from 1927-2009:

• 30 (7.3 %) suffered strokes and 39 (9.5%) suffered heart attacks
• 67 was the average age of when they had their first stroke
• 18 of the 30 (60%) stroke victims were women
• 6 of the 30 (20%) suffered fatal strokes.

     Among the 18 female stroke victims is Sharon Stone.  Sharon was 43 and training for a 3 mile charity run when she suffered a stroke. After her recovery she became a spokesperson for the American Stroke Association and filmed this PSA.

     Here is the complete list of those who suffered stroke and their most recent best actor/actress Oscar nomination:

Ruth Chatterton, 1930, Sarah and Son

Mary Pickford, 1930, Coquette

Bette Davis, 1963, What Ever Happened to Baby Jane?

Claudette Colbert, 1945, Since You Went Away

Merle Oberon, 1936, The Dark Angel

Gladys George, 1937, Valiant is the Word for Carrie

Robert Donat, 1940, Goodbye, Mr. Chips

James Cagney, 1956, Love Me or Leave Me

Greer Garson, 1961, Sunrise at Campobello

Cary Grant, 1945, None But the Lonely Heart

Walter Pidgeon, 1944, Madame Curie

Jean Arthur, 1944, The More the Merrier

Celia Johnson, 1947, Brief Encounter

Gene Kelly, 1946, Anchors Away

Anne Baxter, 1951, All About Eve

Broderick Crawford, 1950, All the King's Men

Kirk Douglas, 1957, The Lust for Life

Julie Harris, 1953, The Member of the Wedding

Burt Lancaster, 1982, Atlantic City

Richard Burton, 1978, Anne of the Thousand Days

Grace Kelly, 1955, The Country Girl

Anthony Franciosa, 1958, A Hatful of Rain

Elizabeth Taylor, 1967, Who's Afraid of Virginia Woolf?

Patricia Neal, 1969, The Subject Was Roses

Edith Evans, 1968, The Whisperers

Dudley Moore, 1982, Arthur

James Garner, 1986, Murphy's Romance

Sharon Stone, 1996, Casino

Samantha Morton, 2004, In America

Strokes and the Chiropractor

      It is amazing how often I'm researching one item for a blog and wind up learning something that completely changes everything.  While looking for more images of stroke awareness I came across this picture of a billboard and was completely shocked!

 Once I started looking I found various stories on the web about people who have suffered strokes following their visits to the Chiropractor.  One that interested me was that of Brittmarie Harwe.  In her own words here is her story as she told it to the  Connecicut General Assembly, March 3, 2008 : 

On April 18, 1993, I was just 26 years old, the day before my daughter turned 2. I went to a chiropractor because of a sore shoulder and neck.  I had a stroke immediately following the chiropractic cervical adjustment. The chiropractor called 911 and reported his patient was having a reaction.  He didn't mention he had just performed a neck adjustment, nor did he mention that I became immediately so dizzy I was unable to sit or stand without his assistance.  I couldn't speak. I was unable to focus my eyes. I was taken by ambulance to the hospital, and tests revealed that one of my vertebral arteries was crushed during the adjustment.  I was left with many neurological disabilities, including left-side weakness, paralyzed vocal chord, and the worst of all, I lost the ability to swallow. Since I can't swallow, I have a feeding tube that was surgically placed in my stomach. For the past 14 years, I haven't been able to eat anything except liquid nutrition.

As you continue to read her testimony not only before this assembly but others it is clear that she was harmed by her chiropractor.

What does the medical community have to say about this? Well before we go any further you need to understand what a VBA dissection is: (thank you Wikipedia) Vertebral artery dissection is a dissection (a flap-like tear) of the inner lining of the vertebral artery, which is located in the neck and supplies blood to the brain. After the tear, blood enters the arterial wall and forms a blood clot, thickening the artery wall and often impeding blood flow. The symptoms of vertebral artery dissection include head and neck pain and intermittent or permanent stroke symptoms such as difficulty speaking, impaired coordination and visual loss. It is usually diagnosed with a contrast-enhanced CT or MRI scan. Got it, ok onward.

According to  The National Center for Biotechnology Information's study published in March of 2010:

VBA stroke is a very rare event in the population. The increased risks of VBA stroke associated with chiropractic and PCP visits is likely due to patients with headache and neck pain from VBA dissection seeking care before their stroke. We found no evidence of excess risk of VBA stroke associated chiropractic care compared to primary care.

So where does this leave us?  Should you visit a Chiropractor?  Dr. Harriet Hall, an outspoken critic of alternative medicine and a retired US Air Force flight surgeon, wrote an article for Science-Based Medicine on this subject.  She ends her article   Chiropractic and Stroke  with this advice:

“Don’t ever let a chiropractor touch your neck “is the safest advice; but we can’t expect everyone to accept it. Some patients have had good experiences with neck manipulations and will continue to ask for them. We can’t presume to dictate to others. If someone judges that there is a one in a million risk of a stroke and is willing to take that risk, he has every right to do so. I think people have the right to engage in risky behaviors like skydiving and smoking cigarettes. I just think they deserve to know there is a risk, and to have some idea how much of a risk it is. I suspect the general public doesn’t know the facts about neck manipulation.   Following this article there are over 300 posts sharing direct thoughts and views on the subject.  

     As with anything education and communication are the most important tools you need to have.  Be completely clear with any health care provider as to any and all symptoms you are experiencing. Express any and all concerns about any treatment you are going to receive.

      I saw a chiropractor about 15 years ago following a car accident.  While he was unable to help me I had no complaints.  HOWEVER now knowing the risk involved I am not sure that I would ever visit a Chiropractor and allow him to manipulate my neck.

What's your opinion?  Did you know that this risk existed?

May is.....

     May is pretty simply one of those busy busy months.  We have Mother's Day kicking if off and then Memorial Day ending it..  Ooooo never noticed how May is book-ended with M holidays (remember I'm easily entertained).  Once you have school aged kids the outside obligations seem to pile on... recitals, play-offs, award ceremonies, end of year parties, dances... it truly can get incredibly over whelming at times.  Well I am here to add one more thing to the mix:

As you know the entire reason that I even have a blog is because I am a Stroke Survivor.  Too many people suffer devastating disabilities because those around them were not aware they were having a stroke.  The simple reality of my life is that because my husband loves Gray's Anatomy, he knew I was having a stroke. We can't remember if it was a Public Service Announcement or simply an episode that discussed Stroke Symptoms but he learned the warning signs and got me help as quickly as possible.  For the next few weeks I will sharing and hopefully educating as many people as I can on Stroke Awareness.

Please learn this simple acronym: FAST

Time truly is of the essence when it comes to diagnosing a stroke.  There is a medication that can ONLY be given up to 4 hours after the onset of symptoms. Had my husband listened to me he would have taken me home to sleep.  I received the medication within 45 minutes of onset and was incredibly lucky.  WE refuse to even think about what would have happened had he listened.

Just to add a bit more to the month of May~

     We are on Graduation countdown..... June 1st is graduation so things are going to be quite busy which of course means life is going to be incredibly entertaining and you know I'll have to share it with you.

I'm looking forward to spending the next 30 days driving crazy, crying, laughing, ranting and probably more crying (you know the proud Mom kind) and I hope you'll join me :)   And please oh please if you or someone in your family has survived a stroke or are helping someone recover do contact me I'd love to hear your story.  

Thank heavens Cinco de Mayo is here soon as I'm gonna need some Margaritas (send tequila please).

Grey's Anatomy Saved My Life

We sometimes tease my husband that he's such a girl with the shows he likes to watch.  He gets a kick out of Bridezillas watching what people tolerate from the latest Bride gone wild.  He also is quite loyal to Grey's Anatomy~ Thank Heavens!!

     Six months ago Saturday my husband son and I were shopping at BJ's.  I had a headache on the way there that bothered my vision but we had to shop as I was one of five cooking Chili for a Church Dinner the next day.  At one point while shopping my son commented how I was slurring my words.  Next they noticed I was having trouble walking.  All I wanted to do was go home and lie down my head was killing me at this point. 

    The hospital was located just five minutes away and my husband decided something was wrong and took me there.  Thank heavens as I was having a stroke.  Normally my husband would have just taken me home like I asked.  However just a week or so before Gray's Anatomy had an episode on someone having a stroke and he said I reminded him of that patient.

     So here I am six months post stroke this past Saturday.  Physically nearly all of the signs I suffered a stroke are gone.  While I still struggle with fatigue and aphasia when tired or stressed I don't think most people would guess I am a stroke survivor.  Recovery has been a lot of hard work and I am very blessed to have an incredible support system around me.  I was fortunate that my stroke wasn't as severe due to the fact I was at the hospital so quickly after its onset.  There is a drug called t-PA which if received can greatly determine a patient's survival and recovery.  This drug can only be administered up to 3 hours after the onset of the stroke. 

Learn the many warning signs of a stroke. Act FAST and CALL 9-1-1

• Face ~ ask the person to smile.  Does one side droop?
• Arm ~ ask the person to raise their arms.  Does one arm drift downward?
• Speech ~ ask the person to repeat a simple sentence.  Do their words seem confused?
• Time ~ If you observe ANY of these signs call 9-1-1 IMMEDIATELY

So thank you Dr. Meredith Grey and company for educating my husband!!  Yes we do have the DVR ready for their return in September.